Introduced in Senate
S 5488 - 119Sickle Cell Disease Treatment Centers Act of 2026
Read twice and referred to the Committee on Health, Education, Labor, and Pensions.
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Read twice and referred to the Committee on Health, Education, Labor, and Pensions.
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Health
Health
of sickle cell disease and other heritable hemoglobinopathies treatment centers Subpart I of part D of title III of the Public Health Service Act ( 42 U.S.C. 254b et seq. ) is amended by inserting after section 330P ( 42 U.S.C. 254c–22 ) th
Eligible entity migrating and foreign-born patients; and (7) conducting significant public health awareness and education activities with respect to sickle cell disease and sickle cell trait. (c) Eligible entity The term eligible entity mea
eligible entity n patients; and (7) conducting significant public health awareness and education activities with respect to sickle cell disease and sickle cell trait. (c) Eligible entity The term eligible entity means any entity that is com
ation The community-based organization of the eligible entity shall provide or coordinate services to patients and families, which may include the following: (A) Providing education and outreach to individuals at-risk for sickle cell trait,
mittee on Health, Education, Labor, and Pensions and the Committee on Appropriations of the Senate and the Committee on Energy and Commerce and the Committee on Appropriations of the House of Representatives a report on the impact of the Si
mittee on Health, Education, Labor, and Pensions and the Committee on Appropriations of the Senate and the Committee on Energy and Commerce and the Committee on Appropriations of the House of Representatives a report on the impact of the Si
mittee on Health, Education, Labor, and Pensions and the Committee on Appropriations of the Senate and the Committee on Energy and Commerce and the Committee on Appropriations of the House of Representatives a report on the impact of the Si
Data Collection s with sickle cell disease; (4) improving the pediatric-to-adult health care transition; (5) collecting and contributing clinical data from States participating in the Sickle Cell Data Collection program of the Centers for D
data collection lth care providers, and treatment modality options to improve patient outcomes, and submit such national strategy to the Secretary. (C) Coordinate with Federal agencies to improve data collection over the lifespan of patient
data collection ion, and family and community engagement. (I) Inform and educate the public about sickle cell disease, sickle cell trait, and options for quality care. (g) CDC sickle cell disease data collection program for SCD treatment ce
ard grants ith a medical hub and one or more community-based organization; and (C) that incorporates a community health worker into the care team. (b) Program established The Secretary shall award grants to eligible entities to establish tr
award grants organization; and ``(C) that incorporates a community health worker into the care team. ``(b) Program Established.--The Secretary shall award grants to eligible entities to establish treatment centers using a hub-and-spoke fram
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Summary
Sponsors
![Sen. Van Hollen, Chris [D-MD]](https://www.congress.gov/img/member/bfd06b6d2baa5394bd0cf5ca0176014e_200.jpg)
![Sen. Booker, Cory A. [D-NJ]](https://www.congress.gov/img/member/b001288_200.jpg)
![Sen. Klobuchar, Amy [D-MN]](https://www.congress.gov/img/member/k000367_200.jpg)