Introduced in House

[Congressional Bills 119th Congress] [From the U.S. Government Publishing Office] [H. Res. 1613 Introduced in House (IH)] 119th CONGRESS 2d Session H. RES. 1613 Expressing support for the recognition of October 5th as ``National Peroxisomal Disorder Awareness Day''. _______________________________________________________________________ IN THE HOUSE OF REPRESENTATIVES October 5, 2026 Mrs. Kim submitted the following resolution; which was referred to the Committee on Energy and Commerce _______________________________________________________________________ RESOLUTION Expressing support for the recognition of October 5th as ``National Peroxisomal Disorder Awareness Day''. Whereas National Peroxisomal Disorder Awareness Day will help to foster understanding of the impact that peroxisomal disorders, including peroxisome biogenesis disorder-Zellweger spectrum disorder and the related single enzyme deficiencies, like D-bifunctional protein deficiency, have on patients and their families; Whereas peroxisomal disorders are progressive genetic disorders that affect peroxisome function and can impact multiple organ systems, often resulting in neurological, liver, kidney, vision, hearing, gastrointestinal, endocrine, and other serious health complications; Whereas there are very few treatments and still no cure for peroxisomal disorders; Whereas all patients with peroxisomal disorders suffer from a variety of health issues, causing a strain on resources and on the delivery of healthcare in the United States; Whereas peroxisomal disorders can have a devastating impact on the health and finances of people of all ages, and equally affect people of all races, genders, nationalities, geographic locations, and income levels; Whereas peroxisomal disorders instill in patients and their caregivers a fear of an unknown future with a life-threatening genetic disease and apprehension over possible discrimination, including the risk of losing their health and life insurance, their jobs, and their chances for promotion; Whereas countless friends, loved ones, spouses, and caregivers of patients with peroxisomal disorders must shoulder, the physical, emotional, and financial burdens; Whereas people who have chronic, life-threatening diseases like peroxisomal disorders and their caregivers have a predisposition to depression because of their anxiety over pain, suffering, and premature death; and Whereas spreading awareness on October 5th is crucial to reducing barriers to health care access, including complicated and burdensome systems, limited supply of health care providers with an understanding of peroxisomal disorders, an arduous process for diagnosis, and limited resources to invest in new therapies and treatments: Now, therefore, be it Resolved, That the House of Representatives-- (1) expresses support for the recognition of ``National Peroxisomal Disorder Awareness Day''; and (2) expresses concern for the severe strain on American families impacted by peroxisome disorders.